Back to Search Start Over

Design and process evaluation of an informative website tailored to breast cancer survivors' and intimate partners' post-treatment care needs.

Authors :
Pauwels, Evelyn
Van Hoof, Elke
Charlier, Caroline
Lechner, Lilian
De Bourdeaudhuij, Ilse
Source :
BMC Health Services Research; 2013, Vol. 13 Issue 1, p1-13, 13p, 1 Color Photograph, 1 Diagram, 4 Charts
Publication Year :
2013

Abstract

Background: On-line provision of information during the transition phase after treatment carries great promise in meeting shortcomings in post-treatment care for breast cancer survivors and their partners. The objectives of this study are to describe the development and process evaluation of a tailored informative website and to assess which characteristics of survivors and partners, participating in the feasibility study, are related to visiting the website. Methods: The development process included quantitative and qualitative assessments of survivors' and partners' care needs and preferences. Participants' use and evaluation of the website were explored by conducting baseline and post-measurements. During the intervening 10-12 weeks 57 survivors and 28 partners were granted access to the website. Results: Fifty-seven percent (n=21) of survivors who took part in the post-measurement indicated that they had visited the website. Compared to non-visitors (n=16), they were more likely to have a partner and a higher income, reported higher levels of self-esteem and had completed treatment for a longer period of time. Partners who consulted the on-line information (42%, n=8) were younger and reported lower levels of social support compared to partners who did not visit the website (n=11). Visitors generally evaluated the content and lay-out positively, yet some believed the information was incomplete and impersonal. Conclusions: The website reached only about half of survivors and partners, yet was mostly well-received. Besides other ways of providing information and support, a website containing clear-cut and tailored information could be a useful tool in post-treatment care provision. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
14726963
Volume :
13
Issue :
1
Database :
Complementary Index
Journal :
BMC Health Services Research
Publication Type :
Academic Journal
Accession number :
85916385
Full Text :
https://doi.org/10.1186/1756-0500-5-578