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Third Åland islands conference on von Willebrand disease, 26-28 September 2012: meeting report.

Authors :
Berntorp, E.
Fuchs, B.
Makris, M.
Montgomery, R.
Flood, V.
O'Donnell, J. S.
Federici, A. B.
Lillicrap, D.
James, P.
Budde, U.
Morfini, M.
Petrini, P.
Austin, S.
Kannicht, C.
Jiménez-Yuste, V.
Lee, C.
Source :
Haemophilia; Mar2013 Supplement 3, Vol. 19, p1-18, 18p, 2 Black and White Photographs, 3 Diagrams, 3 Charts, 6 Graphs
Publication Year :
2013

Abstract

The first meeting of international specialists in the field of von Willebrand disease ( VWD) was held in the Åland islands in 1998 where Erik von Willebrand had first observed a bleeding disorder in some members of a family from Föglö and a summary of the meeting was published in 1999. The second meeting was held in 2010 and a report of the meeting was published in 2012. Topics covered included progress in understanding of VWD over the last 50 years; multimers; classification of VWD; pharmacokinetics and laboratory assays; genetics; treating the paediatric patient; prophylaxis; geriatrics; gene therapy and treatment guidelines. This third meeting held over 3 days covered the structure and function of von Willebrand factor ( VWF); type 1 VWD, the most common form of the disease; a lifespan of pharmacokinetics in VWD; detecting inhibitors in VWD patients; and special challenges in understanding and treating the female VWD patient. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
13518216
Volume :
19
Database :
Complementary Index
Journal :
Haemophilia
Publication Type :
Academic Journal
Accession number :
85317802
Full Text :
https://doi.org/10.1111/hae.12078