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From personal challenge to technical fix: the risks of depersonalised care.
- Source :
- Health & Social Care in the Community; Mar2012, Vol. 20 Issue 2, p145-154, 0p, 4 Charts
- Publication Year :
- 2012
-
Abstract
- Our research focuses on the complexity of needs associated with distress in people with advanced cancer. We have recently completed a large longitudinal survey exploring the interplay between a number of components of distress, including depression, demoralisation, debility and spirituality, amongst a cohort of people living with terminal cancer. Participants were recruited from 25 hospices across the Northwest of England between 2007-2009. A purposive subsample of 27 people was invited to take part in a qualitative interview to explore in greater depth their personal experiences of living with illness and related distress. Holistic-content analysis revealed two emerging themes: 'personal or personalised care' and 'expectations of truth and certainty'. We discuss these themes in the light of Illich's critique of health care as a 'technical response to a personal challenge'. We highlight the need for further work to explore the impact of organisation of care on personalised need and suggest looking to the chronic illness self-management literature for help in developing future palliative care approaches. [ABSTRACT FROM AUTHOR]
- Subjects :
- ATTITUDE (Psychology)
CANCER patients
DEPERSONALIZATION
DISEASES
INTERVIEWING
LONGITUDINAL method
RESEARCH methodology
MEDICAL quality control
PALLIATIVE treatment
QUESTIONNAIRES
TERMINALLY ill
QUALITATIVE research
JUDGMENT sampling
THEMATIC analysis
PATIENT-centered care
DATA analysis software
PATIENTS' attitudes
Subjects
Details
- Language :
- English
- ISSN :
- 09660410
- Volume :
- 20
- Issue :
- 2
- Database :
- Complementary Index
- Journal :
- Health & Social Care in the Community
- Publication Type :
- Academic Journal
- Accession number :
- 71285919
- Full Text :
- https://doi.org/10.1111/j.1365-2524.2011.01026.x