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Promoting recruitment of minority ethnic groups into research: qualitative study exploring the views of South Asian people with asthma.
- Source :
- Journal of Public Health; Dec2011, Vol. 33 Issue 4, p604-615, 12p
- Publication Year :
- 2011
-
Abstract
- Background We sought to understand the barriers and facilitators to participation in research from the perspectives of South Asian people with asthma. Methods Eight focus groups were conducted in the preferred language of participants. Sampling was purposeful to ensure inclusion of males and females from differing ethnic, linguistic and religious backgrounds. Results The forming of trusting relationships was described as pivotal to the successful recruitment of minority ethnic groups into research; personalized approaches were likely to be better received than more impersonal written approaches. Notable barriers to participation included: the stigma of being labelled with asthma; concerns surrounding participation in pharmaceutical trials; major time or travel commitments and a failure to show respect by not making information available in minority ethnic languages. Flexibility, in terms of timing, location and respecting of cultural and religious sensitivities around gender segregation, together with the offer of incentives, were highlighted as key factors to promote participation. Conclusions The barriers to recruitment are largely surmountable, but these will necessitate the use of resource intensive and more personalized approaches than are commonly employed for the White European origin population. Our proposed model to enhance recruitment is likely to have transferability beyond the field of asthma. [ABSTRACT FROM PUBLISHER]
- Subjects :
- ASIANS
ASTHMA
ATTITUDE (Psychology)
CONTENT analysis
DISEASES
ETHNIC groups
FOCUS groups
MINORITIES
MOTIVATION (Psychology)
SOUND recordings
SOCIAL stigma
TRANSPORTATION
TRUST
QUALITATIVE research
JUDGMENT sampling
CULTURAL values
COMMUNICATION barriers
THEMATIC analysis
HUMAN research subjects
PATIENT selection
PSYCHOLOGY of human research subjects
PARTICIPANT-researcher relationships
DATA analysis software
Subjects
Details
- Language :
- English
- ISSN :
- 17413842
- Volume :
- 33
- Issue :
- 4
- Database :
- Complementary Index
- Journal :
- Journal of Public Health
- Publication Type :
- Academic Journal
- Accession number :
- 67380219
- Full Text :
- https://doi.org/10.1093/pubmed/fdq100