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Health-related quality-of-life scales in Parkinson's disease: Critique and recommendations.

Authors :
Martinez-Martin, Pablo
Jeukens-Visser, Martine
Lyons, Kelly E.
Rodriguez-Blazquez, C.
Selai, Caroline
Siderowf, Andrew
Welsh, Mickie
Poewe, Werner
Rascol, Oliver
Sampaio, Cristina
Stebbins, Glenn T.
Goetz, Christopher G.
Schrag, Anette
Source :
Movement Disorders; Nov2011, Vol. 26 Issue 13, p2371-2380, 10p
Publication Year :
2011

Abstract

Health-related quality of life is an important patient-reported outcome used in intervention trials and for monitoring the consequences of health status on physical, mental, and social domains. Parkinson's disease is a complex disorder that strongly affects patients' quality of life. Several health-related quality of life tools have been used in Parkinson's disease. A Movement Disorder Society Task Force was commissioned to rate the psychometric quality of available health-related quality of life scales as applied to Parkinson's disease. Following the methodology adopted by previous work of the Movement Disorder Society Task Force, a review of generic and specific health-related quality of life scales applied in studies on Parkinson's disease was completed. Considering the scales from 3 perspectives-use in Parkinson's disease, use by multiple research groups, and clinimetric properties-a final classification as 'recommended,' 'suggested,' or 'listed' was applied to each reviewed instrument. Four generic scales (EuroQoL, Nottingham Health Profile, 36-Item Short-Form Health Survey, and Sickness Impact Profile) and 5 specific scales (39-Item Parkinson's Disease Questionnaire, Parkinson's Disease Questionnaire Short Form, Parkinson's Disease Quality of Life Questionnaire, Parkinson's Impact Scale, and Scales for Outcomes in Parkinson's Disease-Psychosocial) reached the level of 'recommended.' The 39-item Parkinson's Disease Questionnaire is the most thoroughly tested and applied questionnaire. Three other generic measures (Quality of Life Questionnaire 15D, Schedule for the Evaluation of Individual Quality of Life-Direct Weighting, and World Health Organization Quality of Life Assessment Short Version) and the specific Parkinson's Disease Quality of Life Scale are 'suggested.' With a little additional effort in completing the stipulated requirements, they could reach the 'recommended' level. At present there is a wide variety of health-related quality of life measures for application in the Parkinson's disease setting, and the task force does not recommend the development of a new scale. Selection of the most appropriate instrument for a particular objective requires consideration of the characteristics of each scale and the goals of the assessment. © 2011 Movement Disorder Society [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
08853185
Volume :
26
Issue :
13
Database :
Complementary Index
Journal :
Movement Disorders
Publication Type :
Academic Journal
Accession number :
67365328
Full Text :
https://doi.org/10.1002/mds.23834