Partnership between a consumer-led mental health research network and a large mental health research organisation: an Australian mixed methods case study.

Aim: This paper presents a case study review of an Australian research partnership between an independent mental health lived experience-led research network and an academic organisation established for the research and treatment of disorders of the brain and mind. The aim of the study was to explore the principles and practical requirements needed for a successful partnership that promotes inclusive research practices and power sharing and provide a framework to improve the operationalization of future similar partnerships. Methods: This study was led and conducted by lived experience researchers. We used a mixed-method approach to data collection for data triangulation. An environmental scan of peer-reviewed and grey literature on mental health research partnerships was conducted, followed by a three-part data collection with members of both organisations. Data collection comprised an online survey, in-depth interviews, and a roundtable discussion to integrate findings and formulate recommendations. Results and Conclusion: This case study explores and describes a missed opportunity of a consumer led mental health research organisation to work successfully with an established mental health research organisation. Poor communication and unclear processes led to unmet expectations on both sides. Findings suggest the use of reflective practice by team members of both partner organisations may have been helpful in identifying further improvements to inclusive research practice, empowering consumers in inclusive mental health research. Plain English summary: Background: Involving people in research who have used mental health services improves research outcomes. The Consumer Led Research Network (CLRN) was formed to progress this in Australia and entered into a partnership with the Brain and Mind Centre (BMC), a large, established, research centre. A short, written agreement was made to guide the partnership. Aim: This study explored the principles and practices used to work together. The paper suggests a framework to guide similar work. Methods: Independent consumer researchers worked with CLRN and BMC to carry out the study. People from both groups took part in a survey and individual interviews. The findings of the survey and interviews were analysed and discussed at a group meeting. Results and Conclusion: The study found that the partnership was not well set up to allow success. A better start may have been made if both parties had outlined at the outset what they wanted to result from the partnership. [ABSTRACT FROM AUTHOR]