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"Call 911 - That's my [Advance Care] Plan": Factors that Inform Advance Care Planning Conversation Readiness Among Aging Persons Living With HIV.

Authors :
Pinto Taylor, Emily
Halpin, Sean N.
Marconi, Vincent C.
Justice, Amy C.
Johnson II, Theodore M.
McInnes, D. Keith
Perkins, Molly M.
Source :
Journal of Applied Gerontology; Aug2024, Vol. 43 Issue 8, p1156-1164, 9p
Publication Year :
2024

Abstract

Antiretroviral therapy has dramatically increased the lifespan of people living with HIV (PLWH), but advance care planning (ACP) and hospice services are underutilized in this population. The purpose of this study was to understand barriers and facilitators to ACP among this group. PLWH (n = 25) were recruited from an HIV Clinic at a Veterans Affairs (VA) Medical Center in Atlanta, GA to represent a range of sociodemographic characteristics and experiences. Semi-structured interviews were analyzed using thematic analysis. More than half of participants (64%) indicated not engaging in ACP. We identified four key barriers to ACP: (1) a self-image among PLWH as "survivors" (and a reluctance to think about ACP); (2) a history of mistrust and mistreatment; (3) weak social ties and a desire to avoid disclosure of HIV status; and (4) a value for self-reliance. Findings have important implications for interventions to overcome these barriers. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
07334648
Volume :
43
Issue :
8
Database :
Complementary Index
Journal :
Journal of Applied Gerontology
Publication Type :
Academic Journal
Accession number :
178939081
Full Text :
https://doi.org/10.1177/07334648241233377