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Quality of Care and Management of Atopic Dermatitis Across Different Levels of Healthcare—A Survey-Based Patient Experience.

Authors :
Tzellos, Thrasyvoulos
Svendsen, Synne Ildahl
Øvergaard, Mari
Oftestad, Eldrid
Lahelma, Mari
Asikainen, Anna-Kaisa
Mandla, Randeep
Source :
Journal of Patient Experience; 8/7/2024, p1-8, 8p
Publication Year :
2024

Abstract

Atopic dermatitis (AD) is a chronic and fluctuating disease. Optimal management of AD and related comorbidities requires seamless coordination across multiple layers of the healthcare system. The objective of this survey was to explore patients' experiences with current management of AD. Out of 251 responders to this anonymous survey, 76% reported to have moderate or severe AD. Sixty-nine percent with moderate and 45% with severe AD were followed up at primary care level only. Use of advanced systemic treatment options was rare, and the majority experienced itch (97%), dry skin, rash, negative impact on self-esteem and comorbidities despite ongoing treatment. Only 36% received a treatment plan, more often in secondary (78.3%) than primary care (25.0%). Forty-three percent did not know who was responsible for their follow-up and 54% felt no one was responsible. Treatment options were commonly not known or understood. The survey results demonstrate undertreatment, lack of a holistic approach for management of AD. A national pathway including clear referral criteria and timelines can streamline management of AD across multiple levels of the healthcare system. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
23743735
Database :
Complementary Index
Journal :
Journal of Patient Experience
Publication Type :
Academic Journal
Accession number :
178911900
Full Text :
https://doi.org/10.1177/23743735241272206