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"When I do have some time, rather than spend it polishing silver, I want to spend it with my grandkids": a qualitative exploration of patient values following left ventricular assist device implantation.
- Source :
- BMC Palliative Care; 5/23/2024, Vol. 23 Issue 1, p1-11, 11p
- Publication Year :
- 2024
-
Abstract
- Background: Values are broadly understood to have implications for how individuals make decisions and cope with serious illness stressors, yet it remains uncertain how patients and their family and friend caregivers discuss, reflect upon, and act on their values in the post-left ventricular assist device (LVAD) implantation context. This study aimed to explore the values elicitation experiences of patients with an LVAD in the post-implantation period. Methods: Qualitative descriptive study of LVAD recipients. Socio-demographics and patient resource use were analyzed using descriptive statistics and semi-structured interview data using thematic analysis. Adult (> 18 years) patients with an LVAD receiving care at an outpatient clinic in the Southeastern United States. Results: Interviewed patients (n = 27) were 30–76 years, 59% male, 67% non-Hispanic Black, 70% married/living with a partner, and 70% urban-dwelling. Three broad themes of patient values elicitation experiences emerged: 1) LVAD implantation prompts deep reflection about life and what is important, 2) patient values are communicated in various circumstances to convey personal goals and priorities to caregivers and clinicians, and 3) patients leverage their values for strength and guidance in navigating life post-LVAD implantation. LVAD implantation was an impactful experience often leading to reevaluation of patients' values; these values became instrumental to making health decisions and coping with stressors during the post-LVAD implantation period. Patient values arose within broad, informal exchanges and focused, decision-making conversations with their caregiver and the healthcare team. Conclusions: Clinicians should consider assessing the values of patients post-implantation to facilitate shared understanding of their goals/priorities and identify potential changes in their coping. [ABSTRACT FROM AUTHOR]
- Subjects :
- LEFT heart ventricle surgery
PSYCHOLOGY of cardiac patients
PROSTHETICS
HEALTH self-care
RESEARCH funding
QUALITATIVE research
HEART assist devices
QUESTIONNAIRES
INTERVIEWING
ARTIFICIAL implants
DESCRIPTIVE statistics
DECISION making
EXPERIENCE
THEMATIC analysis
PATIENT-centered care
RESEARCH methodology
PSYCHOLOGICAL stress
POSTOPERATIVE period
CLINICS
PATIENTS' attitudes
Subjects
Details
- Language :
- English
- ISSN :
- 1472684X
- Volume :
- 23
- Issue :
- 1
- Database :
- Complementary Index
- Journal :
- BMC Palliative Care
- Publication Type :
- Academic Journal
- Accession number :
- 177423111
- Full Text :
- https://doi.org/10.1186/s12904-024-01454-y