Back to Search
Start Over
Patients' experiences with shared decision-making in home-based palliative care – navigation through major life decisions.
- Source :
- BMC Palliative Care; 4/17/2024, Vol. 23 Issue 1, p1-10, 10p
- Publication Year :
- 2024
-
Abstract
- Background: This study addresses the issue of shared decision-making (SDM) in a Norwegian home-based palliative care setting. The significance of patient involvement in SDM is widely acknowledged, and many patients want to participate in decisions about care and treatment. Yet, it remains a need for more knowledge regarding the initiators and approaches of SDM in the context of home-based palliative care, particularly from the patients' perspective. The aim of this study is to understand patients' experiences and preferences for SDM in home-based palliative care, seeking to enhance the quality of care and direct the planning of healthcare services. Methods: We used a qualitative explorative design. A hermeneutic approach was employed, and data was collected through in-dept interviews with 13 patients. Results: The study uncovered an overarching theme of "Navigating to reach own decisions," comprising three sub-themes: "To be trapped in life without decisions to act on"; "To surrender to others and let others deal with decisions"; "To continue to be oneself without focusing on disease and decision-making". Conclusions: The findings underscore the need for flexible, person-centered approaches in SDM, tailored to the fluctuating health literacy and changing preferences of patients in palliative care settings. Our study contributes to the understanding of SDM in palliative care by highlighting how patients navigate the balance between autonomy and reliance on HCPs. Future research should explore how healthcare systems, including HCPs' roles in the system, can adapt to the patients' dynamic needs, to ensuring that SDM will remain a supportive and empowering process for patients at all stages of their disease. [ABSTRACT FROM AUTHOR]
- Subjects :
- HOME care services
PALLIATIVE treatment
MEDICAL quality control
QUALITATIVE research
RESEARCH funding
MEDICAL care
DECISION making
JUDGMENT sampling
DESCRIPTIVE statistics
PATIENT-centered care
THEMATIC analysis
RESEARCH
QUALITY assurance
PHENOMENOLOGY
DATA analysis software
PATIENTS' attitudes
PATIENT participation
Subjects
Details
- Language :
- English
- ISSN :
- 1472684X
- Volume :
- 23
- Issue :
- 1
- Database :
- Complementary Index
- Journal :
- BMC Palliative Care
- Publication Type :
- Academic Journal
- Accession number :
- 176652703
- Full Text :
- https://doi.org/10.1186/s12904-024-01434-2