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BIPOC experiences of (anti-)racist patient engagement in adolescent and young adult oncology research: an electronic Delphi study.

Authors :
Cheung, Christabel K
Miller, Kimberly A
Goings, Trenette Clark
Thomas, Bria N
Lee, Haelim
Brandon, Rachel E
Katerere-Virima, Thuli
Helbling, Laura E
Causadias, José M
Roth, Michael E
Berthaud, Frantz M
Jones, Laundette P
Ross, Valentina A
Betz, Gail D
Simmons, Cole D
Carter, Jay
Davies, Simon J
Gilman, Megan L
Lewis, Mark A
Lopes, Gilberto
Source :
Future Oncology; Mar2024, Vol. 20 Issue 9, p547-561, 15p
Publication Year :
2024

Abstract

Aims: To characterize Black, Indigenous and People of Color (BIPOC) adolescent and young adult (AYA) cancer patients' experiences of patient engagement in AYA oncology and derive best practices that are co-developed by BIPOC AYAs and oncology professionals. Materials & methods: Following a previous call to action from AYA oncology professionals, a panel of experts composed exclusively of BIPOC AYA cancer patients (n = 32) participated in an electronic Delphi study. Results: Emergent themes described BIPOC AYA cancer patients' direct experiences and consensus opinion on recommendations to advance antiracist patient engagement from BIPOC AYA cancer patients and oncology professionals. Conclusion: The findings reveal high-priority practices across all phases of research and are instructional for advancing health equity. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
14796694
Volume :
20
Issue :
9
Database :
Complementary Index
Journal :
Future Oncology
Publication Type :
Academic Journal
Accession number :
176099164
Full Text :
https://doi.org/10.2217/fon-2023-0771