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Development and acceptability of PETS-Now, an electronic point-of-care tool to monitor treatment burden in patients with multiple chronic conditions: a multi-method study.
- Source :
- BMC Primary Care; 3/1/2024, Vol. 25 Issue 1, p1-16, 16p
- Publication Year :
- 2024
-
Abstract
- Background: The aim of this study was to develop a web-based tool for patients with multiple chronic conditions (MCC) to communicate concerns about treatment burden to their healthcare providers. Methods: Patients and providers from primary-care clinics participated. We conducted focus groups to identify content for a prototype clinical tool to screen for treatment burden by reviewing domains and items from a previously validated measure, the Patient Experience with Treatment and Self-management (PETS). Following review of the prototype, a quasi-experimental pilot study determined acceptability of using the tool in clinical practice. The study protocol was modified to accommodate limitations due to the Covid-19 pandemic. Results: Fifteen patients with MCC and 18 providers participated in focus groups to review existing PETS content. The pilot tool (named PETS-Now) consisted of eight domains (Living Healthy, Health Costs, Monitoring Health, Medicine, Personal Relationships, Getting Healthcare, Health Information, and Medical Equipment) with each domain represented by a checklist of potential concerns. Administrative burden was minimized by limiting patients to selection of one domain. To test acceptability, 17 primary-care providers first saw 92 patients under standard care (control) conditions followed by another 90 patients using the PETS-Now tool (intervention). Each treatment burden domain was selected at least once by patients in the intervention. No significant differences were observed in overall care quality between patients in the control and intervention conditions with mean care quality rated high in both groups (9.3 and 9.2, respectively, out of 10). There were no differences in provider impressions of patient encounters under the two conditions with providers reporting that patient concerns were addressed in 95% of the visits in both conditions. Most intervention group patients (94%) found that the PETS-Now was easy to use and helped focus the conversation with the provider on their biggest concern (98%). Most providers (81%) felt they had learned something new about the patient from the PETS-Now. Conclusion: The PETS-Now holds promise for quickly screening and monitoring treatment burden in people with MCC and may provide information for care planning. While acceptable to patients and clinicians, integration of information into the electronic medical record should be prioritized. [ABSTRACT FROM AUTHOR]
- Subjects :
- CHRONIC disease treatment
CHRONIC disease diagnosis
EXPERIMENTAL design
THERAPEUTICS
MEDICAL quality control
USER-centered system design
MEDICAL information storage & retrieval systems
FOCUS groups
CONFIDENCE intervals
RESEARCH methodology
SELF-management (Psychology)
INTERNET
ATTITUDE (Psychology)
ATTITUDES of medical personnel
MEDICAL care
MEDICAL personnel
MEDICAL care costs
HEALTH outcome assessment
PATIENTS' attitudes
PATIENT monitoring
MEDICAL protocols
MULTITRAIT multimethod techniques
PRIMARY health care
SURVEYS
T-test (Statistics)
CLINICAL medicine
PSYCHOSOCIAL factors
COMMUNICATION
HEALTH behavior
INTERPERSONAL relations
HEALTH
INFORMATION resources
QUALITY of life
CHI-squared test
QUESTIONNAIRES
RESEARCH funding
PATIENT-professional relations
SOCIODEMOGRAPHIC factors
ODDS ratio
COMORBIDITY
COVID-19 pandemic
Subjects
Details
- Language :
- English
- ISSN :
- 27314553
- Volume :
- 25
- Issue :
- 1
- Database :
- Complementary Index
- Journal :
- BMC Primary Care
- Publication Type :
- Academic Journal
- Accession number :
- 175830046
- Full Text :
- https://doi.org/10.1186/s12875-024-02316-5