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What happens when people develop dementia whilst working? An exploratory multiple case study.
- Source :
- International Journal of Qualitative Studies on Health & Well-Being; Dec2023, Vol. 18 Issue 1, p1-15, 15p
- Publication Year :
- 2023
-
Abstract
- Purpose: This study is an in-depth exploration of the unfolding experiences of five persons who developed dementia while still in paid work/employment, and of their significant others. Namely, we explore how they experienced the actions and decisions taken with respect to work, and what the consequences meant to them. Methods: A qualitative longitudinal case study design with multiple cases was used, including five participants with dementia and significant others of their choice. Interviews were undertaken longitudinally and analysed with the Formal Data-Structure Analysis approach. Results: The joint analysis resulted in two intertwined themes: 1) The significance and consequences of a dementia diagnosis: a double-edged trigger, and 2) Sensemaking and agency. The prevalent images of what dementia is, who can/cannot get it and what it will bring, were revealed as the critical aspects. Having the opportunity to make sense of what has happened and participate in decision-making, contributed decisively to the participants' experiences. Conclusions: Findings illustrate how a dementia diagnosis is alien in work-life, but once diagnosed, it may trigger self-fulfiling expectations based upon stereotypical understanding of dementia. A shift is needed from a deficit-focused perspective, to viewing people with dementia as citizens capable of agency. [ABSTRACT FROM AUTHOR]
- Subjects :
- EMPLOYEE psychology
SIGNIFICANT others
RESEARCH
EMPLOYMENT of people with disabilities
ALZHEIMER'S disease
WORK
PATIENT decision making
WORK-life balance
INTERVIEWING
SOCIAL stigma
EXPERIENCE
QUALITATIVE research
DEMENTIA patients
DEMENTIA
PSYCHOSOCIAL factors
EXPERIENTIAL learning
EMPLOYMENT
PATIENT-family relations
DECISION making
INTERPROFESSIONAL relations
RESEARCH funding
THEMATIC analysis
LONGITUDINAL method
DISEASE complications
Subjects
Details
- Language :
- English
- ISSN :
- 17482623
- Volume :
- 18
- Issue :
- 1
- Database :
- Complementary Index
- Journal :
- International Journal of Qualitative Studies on Health & Well-Being
- Publication Type :
- Academic Journal
- Accession number :
- 174693313
- Full Text :
- https://doi.org/10.1080/17482631.2023.2176278