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"Challenges and concerns faced by parents of a group of Egyptian children with cleft lip/palate: a qualitative study".
- Source :
- BMC Oral Health; 12/16/2023, Vol. 23 Issue 1, p1-9, 9p
- Publication Year :
- 2023
-
Abstract
- Background: Cleft lip and palate are the most common developmental anomalies that affect the mouth and related structures. They can both affect children physiologically, socially, and functionally and lead to psychological distress in their parents. The present study aims to understand the challenges parents of cleft lip and palate patients face in Egypt, elucidate how they cope with these challenges, and assess their concerns for the future. Methods: For the present phenomenological qualitative exploration, the parents of cleft lip and palate patients attending the cleft care clinic were invited to participate in the study through face-to-face recruitment at the clinic. An interview guide about the research question was developed to include standardized open-ended questions providing a framework for structured discussions. The interviews were audio-recorded after obtaining written informed consent from participants then collected data were transcribed for data analysis. Results: Of the 12 participants, there were nine mothers and three fathers. Their children's ages ranged from 1.5 years to 19 years and had different presentations of cleft lip and palate from unilateral cleft lip to complete bilateral cleft lip and palate. Feeding difficulty was one of the main challenges encountered by the parents. At the same time, fear of being subjected to bullying was the main concern for the future of their children. Six themes were noted that were continually reported: Health & Wellbeing; Parental emotions; Parental attitudes & behaviors; Financial aspects; Relationship aspects; and Career/Education. Conclusions: There were 4 factors that directly impacted the themes, namely: the type of cleft, gender of the child, gender role of the parent, and the age of the child impacted the parental concerns and the challenges faced under the influence of sociocultural beliefs and existing support systems. [ABSTRACT FROM AUTHOR]
- Subjects :
- PARENT attitudes
RESEARCH
MOTHERS
WELL-being
GENDER role
PSYCHOLOGY of children with disabilities
ECONOMIC impact
CAREGIVERS
EDUCATION
PARENTS of children with disabilities
FOOD consumption
AGE distribution
CLEFT palate
FATHERS
INTERVIEWING
FEAR
HEALTH status indicators
CLEFT lip
PHENOMENOLOGY
QUALITATIVE research
PARENTING
SEX distribution
PSYCHOSOCIAL factors
SOUND recordings
INTERPERSONAL relations
PARENT-child relationships
PSYCHOLOGICAL adaptation
PEOPLE with disabilities
THEMATIC analysis
EMOTIONS
BULLYING
ADULTS
Subjects
Details
- Language :
- English
- ISSN :
- 14726831
- Volume :
- 23
- Issue :
- 1
- Database :
- Complementary Index
- Journal :
- BMC Oral Health
- Publication Type :
- Academic Journal
- Accession number :
- 174267678
- Full Text :
- https://doi.org/10.1186/s12903-023-03747-9