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Being a child with intellectual disabilities in hospital: The need for an individualised approach to care.

Authors :
Oulton, Kate
Gibson, Faith
Kenten, Charlotte
Russell, Jessica
Carr, Lucinda
Hassiotis, Angela
Kelly, Paula
Kerry, Sam
Tuffrey‐Wijne, Irene
Whiting, Mark
Wray, Jo
Source :
Journal of Applied Research in Intellectual Disabilities; Jan2024, Vol. 37 Issue 1, p1-13, 13p
Publication Year :
2024

Abstract

Background: There is limited qualitative research focussed specifically on what it is like for children and young people with intellectual disabilities coming into hospital, with much of the evidence‐base being about those with Autism Spectrum Condition or adults with intellectual disabilities. Aim: To share rich detail of the emotional and physical impact on children and young people with intellectual disabilities of attending hospital, from their own and their parent's perspective. Methods: Talking Mats interviews, sticker survey and photography with children and young people with intellectual disabilities, and in‐depth interviews, hospital diaries and photography with their parents. Results and Conclusions: The multiple and compounding layers of complexity surrounding hospital care of children and young people with intellectual disabilities resulted in challenges associated with loss of familiarity and routine, undergoing procedures, managing sensory overload, managing pain and having a lack of safety awareness. An individualised approach to their care is needed. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
13602322
Volume :
37
Issue :
1
Database :
Complementary Index
Journal :
Journal of Applied Research in Intellectual Disabilities
Publication Type :
Academic Journal
Accession number :
174237715
Full Text :
https://doi.org/10.1111/jar.13153