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What makes the palliative care initial encounter meaningful? A descriptive study with patients with cancer, family carers and palliative care professionals.
- Source :
- Palliative Medicine; Sep2023, Vol. 37 Issue 8, p1252-1265, 14p
- Publication Year :
- 2023
-
Abstract
- Background: The palliative care initial encounter can have a positive impact on the quality of life of patients and family carers if it proves to be a meaningful experience. A better understanding of what makes the encounter meaningful would reinforce the provision of person-centred, quality palliative care. Aim: To explore the expectations that patients with cancer, family carers and palliative care professionals have of this initial encounter. Design: Qualitative descriptive study with content analysis of transcripts from 60 semi-structured interviews. Setting/participants: Twenty patients with cancer, 20 family carers and 20 palliative care professionals from 10 institutions across Spain. Results: Four themes were developed from the analysis of interviews: (1) the initial encounter as an opportunity to understand what palliative care entails; (2) individualised care; (3) professional commitment to the patient and family carers: present and future; and (4) acknowledgement. Conclusion: The initial encounter becomes meaningful when it facilitates a shared understanding of what palliative care entails and acknowledgement of the needs and/or roles of patients with cancer, family carers and professionals. Further studies are required to explore how a perception of acknowledgement may best be fostered in the initial encounter. [ABSTRACT FROM AUTHOR]
- Subjects :
- TUMOR treatment
PALLIATIVE care nursing
MEDICAL quality control
NURSING
RESEARCH methodology
MOTIVATION (Psychology)
FAMILIES
MEDICAL personnel
INTERVIEWING
PATIENT-centered care
CANCER patients
PSYCHOLOGY of caregivers
PSYCHOSOCIAL factors
QUALITY of life
RESEARCH funding
HOSPICE nurses
CONTENT analysis
PATIENT-professional relations
PALLIATIVE treatment
THERAPEUTIC alliance
Subjects
Details
- Language :
- English
- ISSN :
- 02692163
- Volume :
- 37
- Issue :
- 8
- Database :
- Complementary Index
- Journal :
- Palliative Medicine
- Publication Type :
- Academic Journal
- Accession number :
- 171950759
- Full Text :
- https://doi.org/10.1177/02692163231183998