Back to Search
Start Over
A qualitative study to identify thematic areas for HIV related patient-reported outcome measures (PROM) and patient-reported experience measures (PREM).
- Source :
- Journal of Patient-Reported Outcomes; 5/1/2023, Vol. 7 Issue 1, p1-10, 10p
- Publication Year :
- 2023
-
Abstract
- Background: The use of patient-reported outcome measures (PROM) and patient-reported experience measures (PREM) provide health providers with valuable feedback on how to improve clinical care and patient outcomes. This paper describes a qualitative study that was conducted to learn about factors influencing the well-being of people living with HIV (PLHIV) in Finland. The findings will be used to develop themes for HIV-specific PROM and PREM questions. Methods: PROMs and PREMs were developed by the Finnish Institute for Health (THL) as a part of a project to develop a national quality-of-care registry for HIV. The study aimed to identify issues and concerns among people living with HIV (PLHIV) that influence their well-being (PROMs) and their experiences in the healthcare system (PREMs). The data were collected through face-to-face in-depth interviews and focus group discussions based on open-ended and semi-structured questions. The data were analyzed using thematic analysis. Results: The assessment identified the following PROMs of concern: psychological well-being, concerns about stigma, physical health, social well-being, sexual well-being, medication uptake, managing other medications with antiretrovirals (ARVs), and growing old. The assessment identified the following PREMs: helping patients understand their own health status, proving an opportunity for patients to discuss physical health, psychological and sexual well-being, supporting the uptake of ARVs, assisting patients with medication use, showing compassion towards patients, and empowering patients against stigma. Conclusion: These findings of the study can be used to develop domain-specific PROM and PREM questions for the national HIV quality care register. [ABSTRACT FROM AUTHOR]
- Subjects :
- EXPERIMENTAL design
HIV infections
WELL-being
MEDICAL quality control
RESEARCH methodology
HUMAN sexuality
HEALTH outcome assessment
INTERVIEWING
ACQUISITION of data
SOCIAL stigma
ANTIRETROVIRAL agents
HEALTH status indicators
PATIENT-centered care
PATIENTS' attitudes
QUALITATIVE research
COMPARATIVE studies
CONCEPTUAL structures
QUALITY of life
QUESTIONNAIRES
MEDICAL records
HEALTH behavior
DESCRIPTIVE statistics
SEX customs
RESEARCH funding
THEMATIC analysis
PSYCHOLOGY of HIV-positive persons
EVALUATION
Subjects
Details
- Language :
- English
- ISSN :
- 25098020
- Volume :
- 7
- Issue :
- 1
- Database :
- Complementary Index
- Journal :
- Journal of Patient-Reported Outcomes
- Publication Type :
- Academic Journal
- Accession number :
- 163415048
- Full Text :
- https://doi.org/10.1186/s41687-023-00582-y