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A guiding framework for creating a comprehensive strategy for mHealth data sharing, privacy, and governance in low- and middle-income countries (LMICs).

Authors :
Hussein, Rada
Griffin, Ashley C
Pichon, Adrienne
Oldenburg, Jan
Source :
Journal of the American Medical Informatics Association; Apr2023, Vol. 30 Issue 4, p787-794, 8p, 3 Diagrams, 2 Charts
Publication Year :
2023

Abstract

With the numerous advances and broad applications of mobile health (mHealth), establishing concrete data sharing, privacy, and governance strategies at national (or regional) levels is essential to protect individual privacy and data usage. This article applies the recent Health Data Governance Principles to provide a guiding framework for low- and middle-income countries (LMICs) to create a comprehensive mHealth data governance strategy. We provide three objectives: (1) establish data rights and ownership to promote equitable benefits from health data, (2) protect people through building trust and addressing patients' concerns, and (3) promote health value by enhancing health systems and services. We also recommend actions for realizing each objective to guide LMICs based on their unique mHealth data ecosystems. These objectives require adopting a regulatory framework for data rights and protection, building trust for data sharing, and enhancing interoperability to use new datasets in advancing healthcare services and innovation. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
10675027
Volume :
30
Issue :
4
Database :
Complementary Index
Journal :
Journal of the American Medical Informatics Association
Publication Type :
Academic Journal
Accession number :
162567896
Full Text :
https://doi.org/10.1093/jamia/ocac198