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"Sometimes I Feel Grateful...": Experiences of the Adolescent Siblings of Children with Autism Spectrum Disorder in Malaysia.

Authors :
Chu, Shin Ying
Kassim, Siti Nur Zafirah binti
Gan, Chun Hong
Fierro, Veronica
Chan, Caryn Mei Hsien
Hersh, Deborah
Source :
Journal of Autism & Developmental Disorders; Feb2023, Vol. 53 Issue 2, p795-807, 13p, 2 Charts
Publication Year :
2023

Abstract

Sibling relationships remain understudied in typically developing adolescents who have siblings with autism spectrum disorder (ASD). This study explored the lived experiences and perceptions of adolescents who have a brother or a sister with a diagnosis of ASD using semi-structured interviews. Using thematic analysis, the participants reported having difficulties communicating with their siblings. Feeling a mixture of emotions was common when interacting with their siblings with ASD and emotional self-regulation was a typical coping strategy utilized by these adolescents. Despite the challenges, having a sibling with ASD led to closer relationships between the siblings. These findings offer insights into these adolescents' needs and how they may be best supported, informing the practice of speech-language pathology and other health professions. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
01623257
Volume :
53
Issue :
2
Database :
Complementary Index
Journal :
Journal of Autism & Developmental Disorders
Publication Type :
Academic Journal
Accession number :
162013118
Full Text :
https://doi.org/10.1007/s10803-021-05184-5