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Caregivers' perception of teenagers' dignity in end of life stages: A phenomenological study.
- Source :
- Nursing Ethics; Feb2023, Vol. 30 Issue 1, p121-132, 12p
- Publication Year :
- 2023
-
Abstract
- Introduction: Maintaining patient dignity in a caregiving environment is one of the most important moral responsibilities for caregivers. Nonetheless, there are vulnerable groups, specifically teenagers, who in their final stages of life are prone to their dignity being threatened. Moreover, dignity is an abstract concept and there is no studies done on teenagers' dignity in the final stages of life available in Iran. Purpose : The purpose of this study is to describe the caregivers' experiences regarding teenagers' dignity in the final stages of life. Research design : This study is a descriptive phenomenological qualitative research project. The data was collected using deep individual and semi-structured interviews as well as taking notes. The Colaizzi analysis method was used to analyze the data. Participants and research context : 22 caregivers working with teenagers in the final stages of life in a public health centers in Iran who had the criteria to enter the study were selected using a purposeful sampling method and invited to join the study from August 2018 to June 2019. The sampling continued until data saturation. Findings : The findings of the present study were presented in the form of three main themes including "private," "respecting individual identity," and "attention to teenagers' needs" and an additional eight categories. Ethical Considerations: The study's protocol was approved by the Research Ethics Committee of the Shiraz University of Medical Sciences and all ethical principles were followed throughout the study. Discussion and conclusion : Based on the present study from the caregivers' point of view, teenagers in their final stages of life required to be cared for and taught in an environment that their privacy was maintained and their individual identity was respected as well as getting attention from the caregivers and companions. In such situations, the teenagers felt calm and their dignity was maintained; therefore, providing a cultural, professional, and organizational setting where all the components of maintaining dignity in teenagers are supported and prioritized is necessary. [ABSTRACT FROM AUTHOR]
- Subjects :
- PRIVACY
ATTITUDES of medical personnel
WORK
RESEARCH methodology
ATTITUDE (Psychology)
INTERVIEWING
GROUP identity
CATASTROPHIC illness
PHENOMENOLOGY
QUALITATIVE research
EXPERIENTIAL learning
MEDICAL ethics
RESEARCH funding
PUBLIC hospitals
DIGNITY
PATIENT-professional relations
PSYCHOLOGY of the terminally ill
JUDGMENT sampling
RESPECT
NEEDS assessment
PALLIATIVE treatment
RELIGION
PSYCHOSOCIAL factors
ADOLESCENCE
Subjects
Details
- Language :
- English
- ISSN :
- 09697330
- Volume :
- 30
- Issue :
- 1
- Database :
- Complementary Index
- Journal :
- Nursing Ethics
- Publication Type :
- Academic Journal
- Accession number :
- 161722854
- Full Text :
- https://doi.org/10.1177/09697330221085776