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"Doing Good" in U.S. Cancer Genomics? Valuation practices across the boundaries of research and care in rural community oncology.

Authors :
Darling, Katherine Weatherford
Kohut, Michael
Leeds, Susan
Anderson, Eric C.
Han, Paul K.J.
Source :
New Genetics & Society; Sep2022, Vol. 41 Issue 3, p254-283, 30p, 1 Chart
Publication Year :
2022

Abstract

Genomic Tumour Testing (GTT) is an emerging site of "experimental care" in oncology [Cambrosio, Alberto, Peter Keating, Etienne Vignola-Gagné, Sylvain Besle, and Pascale Bourret. 2018a. "Extending Experimentation: Oncology's Fading Boundary Bbetween Research and Care." New Genetics and Society 37 (3): 207–226. doi: ]. Few efforts to implement GTT have reached community oncology practices or patients living in rural communities within the US. Drawing on interdisciplinary research on a state-wide cancer genomics initiative in the rural US state of Maine, this paper explores the valuation practices within community oncologist and cancer stakeholders accounts of "doing good" within genomic science and care. We contribute to STS literatures on the bio-economy by highlighting the affective dimensions of strategies for managing economic and non-economic values. Clinician and stakeholders negotiated de-economizing and capitalizing modes of doing good as they built local genomic platforms "for Maine." These situated modes of doing good and feeling good via cancer genomics shaped how they navigated the ethical ambiguities of US biomedical markets across the boundaries of research and care. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
14636778
Volume :
41
Issue :
3
Database :
Complementary Index
Journal :
New Genetics & Society
Publication Type :
Academic Journal
Accession number :
159762440
Full Text :
https://doi.org/10.1080/14636778.2022.2091532