Back to Search Start Over

Patient-identified priorities for successful partnerships in patient-oriented research.

Authors :
Santana, Maria J.
Duquette, D'Arcy
Fairie, Paul
Nielssen, Ingrid
Bele, Sumedh
Ahmed, Sadia
Barbosa, Tiffany
Zelinsky, Sandra
Source :
Research Involvement & Engagement; 9/7/2022, Vol. 8 Issue 1, p1-5, 5p
Publication Year :
2022

Abstract

Albertans4HealthResearch, supported by the Alberta Strategy for Patient-Oriented Research Patient Engagement Team, hosted a virtual round table discussion to develop a list of considerations for successful partnerships in patient-oriented research. The group, which consists of active patient partners across the Canadian province of Alberta and some research staff engaged in patient-oriented research, considered advice for academic researchers on how to best partner with patients and community members on health research projects. The group identified four main themes, aligned with the national strategy for patient-oriented research (SPOR) patient engagement framework, highlighting important considerations for researchers from the patient perspective, providing practical ways to implement SPOR's key principles: inclusiveness, support, mutual respect, and co-building. This commentary considers the process behind this engagement exercise and offers advice directly from active patient research partners on how to fulfill the operational patient engagement mandate. Academic research teams can use this guidance when considering how to work together with patient partners and community members. Plain English summary: Albertans4HealthResearch, supported by the Alberta Strategy for Patient-Oriented Research (AbSPORU) Patient Engagement Team, hosted a virtual round table discussion to develop a list of considerations for successful partnerships in patient-oriented research. The group, which consists of active patient partners across the Canadian province of Alberta and some research staff engaged in patient-oriented research, considered advice for academic researchers on how to best partner with patients and community members on health research projects. The group identified four main themes, aligned with the national Strategy for Patient-Oriented Research (SPOR) Patient Engagement Framework, highlighting important considerations for researchers from the patient perspective, providing practical ways to implement SPOR's key principles: inclusiveness, support, mutual respect, and co-building. This commentary considers the process behind this engagement exercise and offers advice directly from active patient research partners on how to fulfill the operational patient engagement mandate. Academic research teams can use this guidance when considering how to work together with patient partners and community members. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
20567529
Volume :
8
Issue :
1
Database :
Complementary Index
Journal :
Research Involvement & Engagement
Publication Type :
Academic Journal
Accession number :
158960448
Full Text :
https://doi.org/10.1186/s40900-022-00384-4