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Red tape, slow emergency, and chronic disease management in post-María Puerto Rico.
- Source :
- Critical Public Health; Sep2022, Vol. 32 Issue 4, p485-498, 14p
- Publication Year :
- 2022
-
Abstract
- This paper draws upon the notion of slow emergency as a framework to interpret ethnographic and qualitative findings on the challenges faced by Puerto Ricans with chronic conditions and health-sector representatives throughout the island during and after Hurricane María. We conducted participant observation and qualitative interviews with chronic disease patients (n = 20) health care providers and administrators (n = 42), and policy makers (n = 5) from across the island of Puerto Rico in 2018 and 2019. Many Puerto Ricans coping with chronic diseases during and after María experienced bureaucratic red tape as a manifestation of the colonial legacies of disaster management and health care. They describe a precarious existence in perpetual 'application pending' status, waiting for services that were not forthcoming. Drawing on ethnographically informed case examples, we discuss the effects of these bureaucratic barriers on persons with three chronic conditions: renal disease, opioid dependency, and HIV/AIDS. We argue that while emergency management approaches often presume a citizen-subject with autonomous capacity to prepare for presumably transient disasters and envision a 'post-disaster future' beyond the immediate crisis, Puerto Rican voices draw attention to the longer, sustained, slow emergency of colonial governance. [ABSTRACT FROM AUTHOR]
- Subjects :
- AIDS treatment
CHRONIC disease treatment
KIDNEY disease treatments
TREATMENT of drug addiction
HIV prevention
NARCOTICS
HIV infections
HEALTH care industry
RESEARCH
CAUSES of death
HEALTH services accessibility
RESEARCH methodology
PRACTICAL politics
MEDICAL personnel
PUBLIC health
PUBLIC administration
INTERVIEWING
EXECUTIVES
EMERGENCY management
ETHNOLOGY research
QUALITATIVE research
PREVENTIVE health services
NATURAL disasters
PSYCHOSOCIAL factors
RESEARCH funding
DESCRIPTIVE statistics
GOVERNMENT policy
PARTICIPANT observation
PSYCHOLOGICAL adaptation
JUDGMENT sampling
THEMATIC analysis
HEMODIALYSIS
DISEASE management
Subjects
Details
- Language :
- English
- ISSN :
- 09581596
- Volume :
- 32
- Issue :
- 4
- Database :
- Complementary Index
- Journal :
- Critical Public Health
- Publication Type :
- Academic Journal
- Accession number :
- 158287713
- Full Text :
- https://doi.org/10.1080/09581596.2021.1998376