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The impact of anencephaly on parents: A mixed-methods study.

Authors :
Berry, Shandeigh N.
Severtsen, Billie
Davis, Andra
Nelson, Lonnie
Hutti, Marianne H.
Oneal, Gail
Source :
Death Studies; 2022, Vol. 46 Issue 9, p2198-2207, 10p, 1 Diagram, 1 Chart
Publication Year :
2022

Abstract

This study used a convergent parallel mixed-method design to explore the impact of an anencephalic pregnancy on parents. Twenty women and four men between 18–59 years old participated. Interview transcripts were analyzed using interpretive phenomenology and synthesized with Perinatal Grief Intensity Scale scores using a Pearson's correlation. Overall, 75% of parents scored intense grief. Qualitative patterns included overwhelming trauma, patient-centeredness as critical, stigmatizing perinatal loss, embracing personhood, and reframing reality. Control over care was associated with decreased grief (p =.019). Health care professionals are ideally positioned to reduce the risk of intense grief in parents experiencing an anencephalic pregnancy. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
07481187
Volume :
46
Issue :
9
Database :
Complementary Index
Journal :
Death Studies
Publication Type :
Academic Journal
Accession number :
158260107
Full Text :
https://doi.org/10.1080/07481187.2021.1909669