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Development of a Mobile Health App (TOGETHERCare) to Reduce Cancer Care Partner Burden: Product Design Study.

Authors :
Oakley-Girvan, Ingrid
Davis, Sharon Watkins
Kurian, Allison
Rosas, Lisa G.
Daniels, Jena
Palesh, Oxana Gronskaya
Mesia, Rachel J.
Kamal, Arif H.
Longmire, Michelle
Divi, Vasu
Source :
JMIR Formative Research; Aug2021, Vol. 5 Issue 8, p1-10, 10p
Publication Year :
2021

Abstract

Background: Approximately 6.1 million adults in the United States serve as care partners for cancer survivors. Studies have demonstrated that engaging cancer survivors and their care partners through technology-enabled structured symptom collection has several benefits. Given the high utilization of mobile technologies, even among underserved populations and in low resource areas, mobile apps may provide a meaningful access point for all stakeholders for symptom management. Objective: We aimed to develop a mobile app incorporating user preferences to enable cancer survivors' care partners to monitor the survivors' health and to provide care partner resources. Methods: An iterative information gathering process was conducted that included (1) discussions with 138 stakeholders to identify challenges and gaps in survivor home care; (2) semistructured interviews with clinicians (n=3), cancer survivors (n=3), and care partners (n=3) to identify specific needs; and (3) a 28-day feasibility field test with seven care partners. Results: Health professionals noted the importance of identifying early symptoms of adverse events. Survivors requested modules on medication, diet, self-care, reminders, and a version in Spanish. Care partners preferred to focus primarily on the patient's health and not their own. The app was developed incorporating quality-of-life surveys and symptom reporting, as well as resources on home survivor care. Early user testing demonstrated ease of use and app feasibility. Conclusions: TOGETHERCare, a novel mobile app, was developed with user input to track the care partner's health and report on survivor symptoms during home care. The following two clinical benefits emerged: (1) reduced anxiety among care partners who use the app and (2) the potential for identifying survivor symptoms noted by the care partner, which might prevent adverse events. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
2561326X
Volume :
5
Issue :
8
Database :
Complementary Index
Journal :
JMIR Formative Research
Publication Type :
Academic Journal
Accession number :
153277794
Full Text :
https://doi.org/10.2196/22608