Back to Search Start Over

Unmet Information Needs Among Hispanic Women with Thyroid Cancer.

Authors :
Chen, Debbie W.
Reyes-Gastelum, David
Hawley, Sarah T.
Wallner, Lauren P.
Hamilton, Ann S.
Haymart, Megan R.
Source :
Journal of Clinical Endocrinology & Metabolism; Jul2021, Vol. 106 Issue 7, pe2680-e2687, 8p
Publication Year :
2021

Abstract

<bold>Context: </bold>Thyroid cancer is the second most common cancer in Hispanic women.<bold>Objective: </bold>To determine the relationship between acculturation level and unmet information needs among Hispanic women with thyroid cancer.<bold>Design: </bold>Population-based survey study.<bold>Participants: </bold>Hispanic women from Los Angeles Surveillance Epidemiology and End Results registry with thyroid cancer diagnosed in 2014-2015 who had previously completed our thyroid cancer survey in 2017-2018 (N = 273; 80% response rate).<bold>Main Outcome Measures: </bold>Patients were asked about 3 outcome measures of unmet information needs: (1) internet access, (2) thyroid cancer information resources used, and (3) ability to access information. Acculturation was assessed with the Short Acculturation Scale for Hispanics (SASH). Health literacy was measured with a validated single-item question.<bold>Results: </bold>Participants' median age at diagnosis was 47 years (range 20-79) and 48.7% were low-acculturated. Hispanic women were more likely to report the ability to access information "all of the time" if they preferred thyroid cancer information in mostly English compared to mostly Spanish (88.5% vs 37.0%, P < 0.001). Low-acculturated (vs high-acculturated) Hispanic women were more likely to have low health literacy (47.2% vs 5.0%, P < 0.001) and report use of in-person support groups (42.0% vs 23.1%, P = 0.006). Depending on their level of acculturation, Hispanic women accessed the internet differently (P < 0.001) such that low-acculturated women were more likely to report use of only a smartphone (34.0% vs 14.3%) or no internet access (26.2% vs 1.4%).<bold>Conclusions: </bold>Low-acculturated (vs high-acculturated) Hispanic women with thyroid cancer have greater unmet information needs, emphasizing the importance of patient-focused approaches to providing medical information. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
0021972X
Volume :
106
Issue :
7
Database :
Complementary Index
Journal :
Journal of Clinical Endocrinology & Metabolism
Publication Type :
Academic Journal
Accession number :
151242375
Full Text :
https://doi.org/10.1210/clinem/dgab128