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Fit for purpose? A cross-sectional study to evaluate the acceptability and usability of HeadUp, a novel neck support collar for neurological neck weakness.

Authors :
Sproson, Lise
Lanfranchi, Vitaveska
Collins, Alexis
Chhetri, Suresh K.
Daly, Niamh
Ennis, Michelle
Glennon, Lucie
Gorrie, George
Jay, Emily
Marsden, Rachael
McCarthy, Avril D.
Pryde, Liz
Roberts, Rhys
Rutherford, Anna
Ryan, Jessica
Stot, Gill
Tindale, Wendy B.
Shaw, Pamela J.
McDermott, Christopher J.
Source :
Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration; Feb2021, Vol. 22 Issue 1/2, p38-45, 8p
Publication Year :
2021

Abstract

The HeadUp collar (previously known as the Sheffield Support Snood) provides support for neck weakness caused by amyotrophic lateral sclerosis (ALS) and has shown to be superior to alternative options in a small cohort of patients from one single center. Here we report the assessment of the HeadUp collar in a larger cohort of patients, exploring the use in other neurological conditions and expanding to other centers across the UK and Ireland. An interventional cross-sectional study design was implemented to investigate the usability and acceptability of the HeadUp collar. A total of 139 patients were recruited for the study, 117 patients had a diagnosis of ALS and 22 patients presented with neck weakness due to other neurological conditions. Participants were assessed at baseline, fitted a HeadUp collar and followed-up one month later. The performance of the HeadUp collar was rated favorably compared to previously worn collars in terms of the ability to eat, drink and swallow. Findings suggest that the collar also permitted a more acceptable range of head movements whilst maintaining a good level of support. We conclude that the HeadUp collar is a suitable option for patients with neck weakness due to ALS and other neurological conditions. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
21678421
Volume :
22
Issue :
1/2
Database :
Complementary Index
Journal :
Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration
Publication Type :
Academic Journal
Accession number :
149790101
Full Text :
https://doi.org/10.1080/21678421.2020.1813308