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Development and testing of a tailored online fertility preservation decision aid for female cancer patients.

Authors :
Berg, Michelle
Meij, Elleke
Bos, Annelies M. E.
Boshuizen, Marieke C. S.
Determann, Domino
Eekeren, Ramon R. J. P.
Lok, Christianne A. R.
Schaake, Eva E.
Witteveen, Petronella O.
Wondergem, Marielle J.
Braat, Didi D. M.
Beerendonk, Catharina C. M.
Hermens, Rosella P. M. G.
Source :
Cancer Medicine; Mar2021, Vol. 10 Issue 5, p1576-1588, 13p
Publication Year :
2021

Abstract

Background: Decision making regarding future fertility can be very difficult for female cancer patients. To support patients in decision making, fertility preservation decision aids (DAs) are being developed. However, to make a well‐informed decision, patients need personalized information tailored to their cancer type and treatment. Tailored cancer‐specific DAs are not available yet. Methods: Our DA was systematically developed by a multidisciplinary steering group (n = 21) in an iterative process of draft development, three rounds of alpha testing, and revisions. The drafts were based on current guidelines, literature, and patients' and professionals' needs. Results: In total, 24 cancer‐specific DAs were developed. In alpha testing, cancer survivors and professionals considered the DA very helpful in decision making, and scored an 8.5 (scale 1–10). In particular, the cancer‐specific information and the tool for recognizing personal values were of great value. Revisions were made to increase readability, personalization, usability, and be more careful in giving any false hope. Conclusions: A fertility preservation DA containing cancer‐specific information is important in the daily care of female cancer patients and should be broadly available. Our final Dutch version is highly appraised, valid, and usable in decision making. After evaluating its effectiveness with newly diagnosed patients, the DA can be translated and adjusted according to (inter)national guidelines. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
20457634
Volume :
10
Issue :
5
Database :
Complementary Index
Journal :
Cancer Medicine
Publication Type :
Academic Journal
Accession number :
149132131
Full Text :
https://doi.org/10.1002/cam4.3711