Managing and sharing research data in children's palliative care: Risks, benefits and imponderables.

The article reports on managing and sharing research data in children's palliative care. Topics include Children's palliative care (CPC) is a growing specialist area, focusing on holistic support for children and young people with life-limiting illness; and to safeguard research participants' research data has proposed strategies including effective anonymization of data to prevent breach of confidentiality; and obtaining consent for the long-term storage and potential re-use of data.