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Health Care Professionals' Awareness of a Child's Impending Death.
- Source :
- Qualitative Health Research; Jul2020, Vol. 30 Issue 9, p1314-1325, 12p
- Publication Year :
- 2020
-
Abstract
- Health care professionals' (HCPs) experiences during early pediatric end-of-life care were explored using a theory-building case study approach. Multiple data collection methods including observation, electronic medical record review, and semi-structured interviews were collected with 15 interdisciplinary HCPs across four cases. Within- and across-case analyses resulted in an emerging theory. HCPs' initial awareness of a child's impending death is fluid, ongoing, and informed through both relational and internal dimensions. Initial cognitive awareness is followed by a deeper focus on the child through time-oriented attention to the past, present, and future. HCPs engage in a "delicate dance of figuring out" key issues. Awareness was exemplified through four themes: professional responsibility, staying connected, grounded uncertainty, and holding in. The emerging theoretical model provides a framework for HCPs to assess their ongoing awareness, identify personal assumptions, and inform gaps in understanding when facilitating early end-of-life care discussions with families. [ABSTRACT FROM AUTHOR]
- Subjects :
- ATTITUDE (Psychology)
AUDIT trails
COGNITION
CONCEPTUAL structures
DECISION making
EXPERIENTIAL learning
INTERVIEWING
MATHEMATICAL models
RESEARCH methodology
CASE studies
MEDICAL personnel
MEDICAL records
SCIENTIFIC observation
PALLIATIVE treatment
PEDIATRICS
PROFESSIONS
QUESTIONNAIRES
STATISTICAL sampling
UNCERTAINTY
WORK
DECISION making in clinical medicine
QUALITATIVE research
THEORY
JUDGMENT sampling
THEMATIC analysis
DISEASE progression
ACQUISITION of data methodology
FIELD notes (Science)
Subjects
Details
- Language :
- English
- ISSN :
- 10497323
- Volume :
- 30
- Issue :
- 9
- Database :
- Complementary Index
- Journal :
- Qualitative Health Research
- Publication Type :
- Academic Journal
- Accession number :
- 143874429
- Full Text :
- https://doi.org/10.1177/1049732320911627