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Development of an eHealth information resource for family carers supporting a person receiving palliative care on the island of Ireland.
- Source :
- BMC Palliative Care; 8/30/2019, Vol. 18 Issue 1, pN.PAG-N.PAG, 1p
- Publication Year :
- 2019
-
Abstract
- Background: Many people receiving palliative care wish to die at home. Often, support from family or friends is key to ensuring that this wish is fulfilled. However, carers report feeling underprepared to undertake this role. This paper describes the process of developing a consensus and evidence based website to provide core information to help people support someone receiving palliative care on the island of Ireland. Methods: The project comprised three phases: (1) a review of systematic reviews facilitated the identification of core information needs; (2) content was developed in collaboration with a Virtual Reference Group (VRG) comprising patients, carers and professionals; and, (3) subject experts within the project team worked with a web developer to précis the agreed content and ensure it was in a format that was appropriate for a website. Members of the VRG were then invited to test and approve the website before it was made available to the general public. Results: Nineteen systematic reviews identified nine consensus areas of core information required by carers; a description of palliative care; prognosis and treatment of the condition; medication and pain management; personal care; specialist equipment; locally available support services; what to do in an emergency; nutrition; and, support for the carer. This information was shared with the VRG and used to develop website content. Conclusions: We engaged with service users and professionals to develop an evidence-based website addressing the agreed core information needs of non-professional carers who wish to provide palliative care to a friend or relative. [ABSTRACT FROM AUTHOR]
- Subjects :
- FAMILIES & psychology
FAMILIES
HEALTH
HOME care services
INTERNET
INTERPROFESSIONAL relations
WEB development
PATIENT-family relations
PALLIATIVE treatment
TERMINALLY ill
INFORMATION resources
PAIN management
SOCIAL support
ACCESS to information
INFORMATION-seeking behavior
INFORMATION needs
EDUCATION
Subjects
Details
- Language :
- English
- ISSN :
- 1472684X
- Volume :
- 18
- Issue :
- 1
- Database :
- Complementary Index
- Journal :
- BMC Palliative Care
- Publication Type :
- Academic Journal
- Accession number :
- 138394697
- Full Text :
- https://doi.org/10.1186/s12904-019-0457-y