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"It doesn't exist...": negotiating palliative care from a culturally and linguistically diverse patient and caregiver perspective.
- Source :
- BMC Palliative Care; 7/2/2018, Vol. 17 Issue 1, pN.PAG-N.PAG, 1p
- Publication Year :
- 2018
-
Abstract
- Background: The end of life represents a therapeutic context that acutely raises cultural and linguistic specificities, yet there is very little evidence illustrating the importance of such dynamics in shaping choices, trajectories and care practices. Culture and language interplay to offer considerable potential challenges to both patient and provider, with further work needed to explore patient and caregiver perspectives across cultures and linguistic groups, and provider perspectives. The objective of this study was to develop a critical, evidence-based understanding of the experiences of people from Culturally and Linguistically Diverse (CALD) backgrounds, and their caregivers, in a palliative care setting. Methods: A qualitative study, using semi-structured interviews to explore key experiences and perspectives of CALD patients and caregivers currently undergoing treatment under oncology or palliative care specialists in two Australian hospitals. Interviews were digitally audio recorded and transcribed in full. A thematic analysis was conducted utilising the framework approach. Results: Sixteen patients and fourteen caregivers from a range of CALD backgrounds participated in semi-structured interviews. The research identified four prevalent themes among participants: (1) Terminology in the transition to palliative care; (2) Communication, culture and pain management; (3) (Not) Talking about death and dying; and, (4) Religious faith as a coping strategy: challenging the terminal diagnosis. Conclusions: CALD patients and caregivers' experiences are multifaceted, particularly in negotiating linguistic difficulties, beliefs about treatment, and issues related to death and dying. Greater attention is needed to develop effective communication skills, recognise CALD patients' particular cultural, linguistic and spiritual values and needs, and acknowledge the unique nature of each doctor-patient interaction. [ABSTRACT FROM AUTHOR]
- Subjects :
- PALLIATIVE treatment
PSYCHOLOGICAL adaptation
CANCER patient medical care
PSYCHOLOGY of caregivers
CONCEPTUAL structures
HEALTH attitudes
HEALTH facilities
INTERVIEWING
LINGUISTICS
RESEARCH methodology
MEDICAL care
PATIENT-professional relations
RELIGION & medicine
MEDICAL specialties & specialists
NEGOTIATION
CULTURAL pluralism
PAIN management
QUALITATIVE research
ATTITUDES toward death
THEMATIC analysis
PATIENTS' attitudes
PSYCHOLOGY
Subjects
Details
- Language :
- English
- ISSN :
- 1472684X
- Volume :
- 17
- Issue :
- 1
- Database :
- Complementary Index
- Journal :
- BMC Palliative Care
- Publication Type :
- Academic Journal
- Accession number :
- 130617004
- Full Text :
- https://doi.org/10.1186/s12904-018-0343-z