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Enteral feeding and its impact on family mealtime routines for caregivers of children with cerebral palsy: A mixed method study.
- Source :
- Australian Occupational Therapy Journal; Feb2018, Vol. 65 Issue 1, p25-34, 10p, 4 Charts
- Publication Year :
- 2018
-
Abstract
- Background/aim: Enteral feedings are part of the daily mealtime experience for many caregivers of children with cerebral palsy. The scope of occupational therapy practice incorporates multiple aspects of the enteral feeding process. Yet, the research in this area is very limited. The purpose of this study was to provide practitioners with better understanding of the impact enteral feedings of children with cerebral palsy have on family mealtime routines. Methods: Using a complimentary mixed method approach, data were obtained through an online survey containing the Satisfaction Questionnaire with Gastrostomy Feeding (SAGA‐8) and supplementary questions, and qualitative semi‐structured phone interviews. Participants were caregivers of children with cerebral palsy who receive their primary nutrition through a gastrostomy tube. Results: This study's cohort consisted of <italic>n</italic> = 36, SAGA‐8, and <italic>n</italic> = 6 in‐depth interviews. The mean age of children of was 9.4 (6.94 SD) with a mean age of 3.4 (5.35 SD) when enteral feeding was introduced. While families' overall situations positively changed after the gastronomy tube placement, environmental barriers and length of feeding time continued to present a challenge to mealtime routines. The mixed methods data analysis revealed that successful adjustment to having a child with a gastronomy tube and problem solving are closely linked and a consistent part of mealtime experience. Conclusion: Findings highlighted the necessity of comprehensive support from health professionals in achieving positive mealtime experience. Themes in this study indicated that caregivers would benefit from a professional with knowledge in the development and integration of rituals and routines to support positive outcomes. [ABSTRACT FROM AUTHOR]
- Subjects :
- ENTERAL feeding
NUTRITION for people with disabilities
CEREBRAL palsy
INTERVIEWING
SERVICES for caregivers
RESEARCH methodology
OCCUPATIONAL therapy
PARENTS of children with disabilities
QUESTIONNAIRES
THEMATIC analysis
DATA analysis software
DESCRIPTIVE statistics
DISEASE complications
PSYCHOLOGY
Subjects
Details
- Language :
- English
- ISSN :
- 00450766
- Volume :
- 65
- Issue :
- 1
- Database :
- Complementary Index
- Journal :
- Australian Occupational Therapy Journal
- Publication Type :
- Academic Journal
- Accession number :
- 127818754
- Full Text :
- https://doi.org/10.1111/1440-1630.12418