Back to Search
Start Over
Social/economic costs and health-related quality of life in patients with cystic fibrosis in Europe.
- Source :
- European Journal of Health Economics; Apr2016 Supplement, Vol. 17, p7-18, 12p
- Publication Year :
- 2016
-
Abstract
- <bold>Objectives: </bold>Our goal was to provide data on the economic burden and health-related quality of life (HRQOL) of patients with cystic fibrosis (CF) and their caregivers in Europe.<bold>Methods: </bold>A cross-sectional study was carried out on adults and children with CF in eight European countries. Patients completed an anonymous questionnaire regarding their socio-demographic characteristics, use of healthcare services and presence of a caregiver. Costs were calculated with a bottom-up approach using unit costs from each participating country, and HRQOL was assessed using EQ-5D. The principal caregiver also answered a questionnaire on their characteristics, HRQOL and burden.<bold>Results: </bold>A total of 905 patients with CF was included (399 adults and 506 children). The total average annual cost per patient varied from €21,144 in Bulgaria to €53,256 in Germany. Adults had higher direct healthcare costs than children, but children had much higher informal care costs (P < 0.0001). Total costs increased with patients' level of dependence. In adults, mean utility fell between 0.640 and 0.870, and the visual analogue scale ranged from 46.0 to 69.7. There was no difference in caregiver HRQOL regardless of whether they cared for an adult or a child. However, caregivers who looked after a child had a significantly higher burden (P = 0.0013).<bold>Conclusions: </bold>Our study highlights the burden of CF in terms of costs and decreased HRQOL for both patients and their caregivers throughout Europe. [ABSTRACT FROM AUTHOR]
- Subjects :
- CYSTIC fibrosis
QUALITY of life
DEMOGRAPHIC characteristics
MEDICAL care use
CAREGIVERS
MEDICAL care costs
PATIENTS
SICK leave
MEDICAL care cost statistics
COMPARATIVE studies
ECONOMIC aspects of diseases
RESEARCH methodology
MEDICAL cooperation
QUESTIONNAIRES
RESEARCH
SICKNESS Impact Profile
SOCIOECONOMIC factors
EVALUATION research
VISUAL analog scale
CROSS-sectional method
ECONOMICS
PSYCHOLOGY
Subjects
Details
- Language :
- English
- ISSN :
- 16187598
- Volume :
- 17
- Database :
- Complementary Index
- Journal :
- European Journal of Health Economics
- Publication Type :
- Academic Journal
- Accession number :
- 115247242
- Full Text :
- https://doi.org/10.1007/s10198-016-0781-6