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Social/economic costs and health-related quality of life in patients with juvenile idiopathic arthritis in Europe.
- Source :
- European Journal of Health Economics; Apr2016 Supplement, Vol. 17, p79-87, 9p
- Publication Year :
- 2016
-
Abstract
- <bold>Objective: </bold>The aim of this study was to determine the economic burden from a societal perspective and the health-related quality of life (HRQOL) of patients with juvenile idiopathic arthritis (JIA) in Europe.<bold>Methods: </bold>We conducted a cross-sectional study of patients with JIA from Germany, Italy, Spain, France, the United Kingdom, Bulgaria, and Sweden. Data on demographic characteristics, healthcare resource utilization, informal care, labor productivity losses, and HRQOL were collected from the questionnaires completed by patients or their caregivers. HRQOL was measured with the EuroQol 5-domain (EQ-5D-5L) questionnaire.<bold>Results: </bold>A total of 162 patients (67 Germany, 34 Sweden, 33 Italy, 23 United Kingdom, 4 France, and 1 Bulgaria) completed the questionnaire. Excluding Bulgarian results, due to small sample size, country-specific annual health care costs ranged from €18,913 to €36,396 (reference year: 2012). Estimated direct healthcare costs ranged from €11,068 to €22,138; direct non-healthcare costs ranged from €7837 to €14,155 and labor productivity losses ranged from €0 to €8715. Costs are also shown to differ between children and adults. The mean EQ-5D index score for JIA patients was estimated at between 0.44 and 0.88, and the mean EQ-5D visual analogue scale score was estimated at between 62 and 79.<bold>Conclusions: </bold>JIA patients incur considerable societal costs and experience substantial deterioration in HRQOL in some countries. Compared with previous studies, our results show a remarkable increase in annual healthcare costs for JIA patients. Reasons for the increase are the inclusion of non-professional caregiver costs, a wider use of biologics, and longer hospital stays. [ABSTRACT FROM AUTHOR]
- Subjects :
- JUVENILE idiopathic arthritis
QUALITY of life
DEMOGRAPHIC characteristics
MEDICAL care use
LABOR productivity
MEDICAL care costs
MEDICAL economics
SICK leave
PATIENTS
MEDICAL care cost statistics
CAREGIVERS
COMPARATIVE studies
ECONOMIC aspects of diseases
RESEARCH methodology
MEDICAL cooperation
QUESTIONNAIRES
RESEARCH
SICKNESS Impact Profile
SOCIOECONOMIC factors
EVALUATION research
CROSS-sectional method
PSYCHOLOGY
ECONOMICS
Subjects
Details
- Language :
- English
- ISSN :
- 16187598
- Volume :
- 17
- Database :
- Complementary Index
- Journal :
- European Journal of Health Economics
- Publication Type :
- Academic Journal
- Accession number :
- 115247237
- Full Text :
- https://doi.org/10.1007/s10198-016-0786-1