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Service user involvement in research may lead to contrary rather than collaborative accounts: findings from a qualitative palliative care study.
- Source :
- Journal of Advanced Nursing (John Wiley & Sons, Inc.); Apr2016, Vol. 72 Issue 4, p759-769, 11p, 4 Charts
- Publication Year :
- 2016
-
Abstract
- Aim The aim of this study was to explore what data emerge when former carergivers (co-researchers) are trained to interview current care-givers about their experiences. Background Despite a trend of involving service users in conducting research interviews, there have been few examinations of how and whether a common service user identity has an impact on the data generated. Design Four co-researchers were recruited, trained and supported to conduct qualitative interviews with 11 current carers of people receiving palliative services. Conversation analysis was used to examine the conversational characteristics of the research interviews. Data were collected in 2010-2011. Results Conversation analysis identified that interactional difficulties were evident across the data. When co-researchers talked about their own experiences as carers, interviewees frequently changed the topic of conversation, thereby closing-down opportunities for further disclosure or elaboration from the interviewee about the original topic. Conclusion Conversation analysis identifies how caregiving identities are co-constructed and points where there is agreement and disagreement in the co-construction. [ABSTRACT FROM AUTHOR]
- Subjects :
- FAMILIES & psychology
PSYCHOLOGY of caregivers
CONVERSATION
DISCOURSE analysis
EXPERIENCE
INTERPROFESSIONAL relations
INTERVIEWING
RESEARCH methodology
PALLIATIVE treatment
RESEARCH funding
RESEARCH ethics
STATISTICAL sampling
SELF-disclosure
PATIENT participation
QUALITATIVE research
NARRATIVES
THEMATIC analysis
PSYCHOLOGY of Research personnel
PSYCHOLOGY of human research subjects
PARTICIPANT-researcher relationships
FIELD notes (Science)
Subjects
Details
- Language :
- English
- ISSN :
- 03092402
- Volume :
- 72
- Issue :
- 4
- Database :
- Complementary Index
- Journal :
- Journal of Advanced Nursing (John Wiley & Sons, Inc.)
- Publication Type :
- Academic Journal
- Accession number :
- 113443500
- Full Text :
- https://doi.org/10.1111/jan.12865