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Daring to tell: the importance of telling others about a diagnosis of dementia.
- Source :
- Ageing & Society; Apr2015, Vol. 35 Issue 4, p765-784, 20p
- Publication Year :
- 2015
-
Abstract
- Learning to live with a diagnosis of dementia is a complex process. Being able to talk about the diagnosis to others represents a major challenge for some people with dementia. This study explores the experiences of people with dementia, and members of their families, around the task of informing others during the six months immediately following their diagnosis of dementia. Five people with dementia living in the community, and their immediate family members, were recruited into an ethnographic study. Data were collected through recorded interviews and participant observation, and were analysed through a grounded theory method within a continuing iterative process. Findings suggest that participants recognised the need to tell others about their diagnosis but these conversations were difficult to initiate and manage, and hindered the processing of emotions. Findings are discussed in relation to implications for practice. [ABSTRACT FROM AUTHOR]
- Subjects :
- DIAGNOSIS of dementia
PSYCHOLOGICAL adaptation
ATTITUDE (Psychology)
DISEASES
EMOTIONS
EXPERIENCE
GROUNDED theory
INTERVIEWING
MARITAL status
RESEARCH methodology
CASE studies
PARTICIPANT observation
SELF-disclosure
SOCIAL stigma
ETHNOLOGY research
THEMATIC analysis
DATA analysis software
MEDICAL coding
Subjects
Details
- Language :
- English
- ISSN :
- 0144686X
- Volume :
- 35
- Issue :
- 4
- Database :
- Complementary Index
- Journal :
- Ageing & Society
- Publication Type :
- Academic Journal
- Accession number :
- 103706869
- Full Text :
- https://doi.org/10.1017/S0144686X13001074