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A Rapid Review on Shared Decision Making in Pediatric Palliative Care and End-of-Life Care: Implications for Clinical Practice, Research, and Policy.

Authors :
Fisher B
Cormack CL
Haskamp AC
Hagen KA
Logan A
Source :
Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association [J Hosp Palliat Nurs] 2025 Feb 01; Vol. 27 (1), pp. 12-19. Date of Electronic Publication: 2024 Dec 03.
Publication Year :
2025

Abstract

Shared decision making is a concept essential to establishing meaningful goals of care that reflect one's preferences, values, beliefs, culture, and quality of life. This rapid review considered shared decision making from the perspective of seriously ill or medically complex children receiving inpatient palliative or end-of-life care, where shared decision making is made on behalf of and in the child's best interest. A total of 118 articles were screened, resulting in the selection of 12 articles using a systematic process. Emergent themes noted and discussed include the roles of family and clinicians, explorative communication, transparency, cultural implications, and ethical challenges.<br />Competing Interests: The authors have no conflicts of interest to disclose.<br /> (Copyright © 2024 by The Hospice and Palliative Nurses Association. All rights reserved.)

Details

Language :
English
ISSN :
1539-0705
Volume :
27
Issue :
1
Database :
MEDLINE
Journal :
Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association
Publication Type :
Academic Journal
Accession number :
39627158
Full Text :
https://doi.org/10.1097/NJH.0000000000001089