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APPROACH e-PROM system: a user-centered development and evaluation of an electronic patient-reported outcomes measurement system for management of coronary artery disease.

Authors :
Roberts A
Benterud E
Santana MJ
Engbers J
Lorenz C
Verdin N
Pearson W
Edgar P
Adekanye J
Javaheri P
MacDonald CE
Simmons S
Zelinsky S
Caird J
Sawatzky R
Har B
Ghali WA
Norris CM
Graham MM
James MT
Wilton SB
Sajobi TT
Source :
Journal of patient-reported outcomes [J Patient Rep Outcomes] 2024 Aug 28; Vol. 8 (1), pp. 102. Date of Electronic Publication: 2024 Aug 28.
Publication Year :
2024

Abstract

Background: Coronary artery disease (CAD) confers increased risks of premature mortality, non-fatal morbidity, and significant impairment in functional status and health-related quality of life. Routine administration of electronic patient-reported outcome measures (PROMs) and its real time delivery to care providers is known to have the potential to inform routine cardiac care and to improve quality of care and patient outcomes. This study describes a user-centered development and evaluation of the Alberta Provincial Project for Outcomes Assessment (APPROACH) electronic Patient Reported Outcomes Measurement (e-PROM) system. This e-PROM system is an electronic system for the administration of PROMs to patients with CAD and the delivery of the summarized information to their care providers to facilitate patient-physician communication and shared decision-making. This electronic platform was designed to be accessible via web-based and hand-held devices. Heuristic and user acceptance evaluation were conducted with patients and attending care providers.<br />Results: The APPROACH e-PROM system was co-developed with patients and care providers, research investigators, informaticians and information technology experts. Five PROMs were selected for inclusion in the online platform after consultations with patient partners, care providers, and PROMs experts: the Seattle Angina Questionnaire, Patient Health Questionnaire, EuroQOL, and Medical Outcomes Study Social Support Survey, and Self-Care of Coronary Heart Disease Inventory. The heuristic evaluation was completed by four design experts who examined the usability of the prototype interfaces. User acceptance testing was completed with 13 patients and 10 cardiologists who evaluated prototype user interfaces of the e-PROM system.<br />Conclusion: Both patients and physicians found the APPROACH e-PROM system to be easy to use, understandable, and acceptable. The APPROACH e-PROM system provides a user-informed electronic platform designed to incorporate PROMs into the delivery of individualized cardiac care for persons with CAD.<br /> (© 2024. The Author(s).)

Details

Language :
English
ISSN :
2509-8020
Volume :
8
Issue :
1
Database :
MEDLINE
Journal :
Journal of patient-reported outcomes
Publication Type :
Academic Journal
Accession number :
39196484
Full Text :
https://doi.org/10.1186/s41687-024-00779-9