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Communications, engagement, and dissemination strategies for the HEALthy Brain and Child Development (HBCD) Study.

Authors :
Cole KM
Jordan CJ
Parkinson M
Estrada KR
Hoffman EA
Croff JM
Freund MP
Howlett KD
Source :
Developmental cognitive neuroscience [Dev Cogn Neurosci] 2024 Oct; Vol. 69, pp. 101431. Date of Electronic Publication: 2024 Aug 13.
Publication Year :
2024

Abstract

The HEALthy Brain and Child Development (HBCD) Study, a multi-site prospective longitudinal cohort study, will examine human brain, cognitive, behavioral, social, and emotional development beginning prenatally and planned through early childhood. Study success depends on the engagement and inclusion of diverse populations of pregnant participants and their children across the United States, including those at high and low risk for prenatal substance use. The Communications, Engagement, and Dissemination (CED) Committee is responsible for the development and implementation of a strategy to promote awareness about the study, encourage participation, and engage HBCD families, community partners, and collaborators. Initial work involved developing versatile recruitment and awareness materials with a consistent and inclusive message that reduces stigma and negative bias towards marginalized populations, including people with substance use and other mental health conditions. These efforts were shaped by an integrated product development workflow and early engagement with HBCD partners to address challenges. Ongoing work includes the expansion of HBCD outreach through newsletters and social media platforms with an emphasis on protecting participant privacy. Future activities will focus on disseminating scientific information through generation of infographics and webinars that will inform participants, families, and the public of discoveries generated from HBCD Study data.<br />Competing Interests: Declaration of Competing Interest The authors declare the following financial interests/personal relationships which may be considered as potential competing interests: Julie M. Croff reports financial support was provided by National Institutes of Health and the Bill & Melinda Gates Foundation. Julie M. Croff reports a relationship with Oklahoma State University Center for Health Sciences that includes: funding grants, speaking and lecture fees, and travel reimbursement. If there are other authors, they declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.<br /> (Copyright © 2024. Published by Elsevier Ltd.)

Details

Language :
English
ISSN :
1878-9307
Volume :
69
Database :
MEDLINE
Journal :
Developmental cognitive neuroscience
Publication Type :
Academic Journal
Accession number :
39173581
Full Text :
https://doi.org/10.1016/j.dcn.2024.101431