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A website to support people with dementia and their family caregivers in advance care planning: Results of a mixed-method evaluation study.
- Source :
-
Patient education and counseling [Patient Educ Couns] 2024 Oct; Vol. 127, pp. 108357. Date of Electronic Publication: 2024 Jun 25. - Publication Year :
- 2024
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Abstract
- Objective: This study aimed to evaluate a theory-based website to support people with dementia and their families in the advance care planning (ACP) process.<br />Methods: We conducted an eight-week evaluation study with a convergent parallel mixed-methods design involving people with mild to moderate dementia and their family caregivers who used the website at their convenience. Interviews were conducted at baseline and after 8 weeks to evaluate usability, acceptability, feasibility, experiences, and effects on ACP knowledge, attitudes, perceived barriers to engaging in ACP, self-efficacy and skills to engage in ACP.<br />Results: We included 52 participants (21 people with dementia and 31 family caregivers). In the interviews, all participants considered the website useful and valued the ACP content. Morever, participants reported that family caregivers mostly used the website alone or with the person with dementia. Participants' ACP knowledge, self-efficacy, and skills improved after 8 weeks compared the beginning of the study.<br />Conclusion: The website may be an ideal introduction for those wanting to start ACP, providing user-friendly content and features for initiating and exploring ACP.<br />Practical Implications: ACP in dementia requires a tailored approach. Extra support is crucial for website adoption, emphasising the role of family caregivers while respecting individuals' autonomy.<br />Competing Interests: Declaration of Competing Interest The authors declare that they have no known competing financial interests or personal relationships that could have appeared to influence the work reported in this paper.<br /> (Copyright © 2024 Elsevier B.V. All rights reserved.)
Details
- Language :
- English
- ISSN :
- 1873-5134
- Volume :
- 127
- Database :
- MEDLINE
- Journal :
- Patient education and counseling
- Publication Type :
- Academic Journal
- Accession number :
- 38943816
- Full Text :
- https://doi.org/10.1016/j.pec.2024.108357