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Does voluntary assisted dying impact quality palliative care? A retrospective mixed-method study.

Authors :
Michael N
Jones D
Kernick L
Kissane D
Source :
BMJ supportive & palliative care [BMJ Support Palliat Care] 2024 Jun 13. Date of Electronic Publication: 2024 Jun 13.
Publication Year :
2024
Publisher :
Ahead of Print

Abstract

Objectives: We aimed to explore the relationship between the pursuit of voluntary assisted dying (VAD) and the delivery of quality palliative care in an Australian state where VAD was newly available METHODS: We adopted a retrospective convergent mixed-methods design to gather and interpret data from records of 141 patients who expressed an interest in and did or did not pursue VAD over 2 years. Findings were correlated against quality domains.<br />Results: The mean patient age was 72.4 years, with the majority male, married/partnered, with a cancer diagnosis and identifying with no religion. One-third had depression, anxiety or such symptoms, half were in the deteriorating phase, two-thirds required help with self-care and 83.7% reported moderate/severe symptoms. Patients sought VAD because of a desire for autonomy (68.1%), actual suffering (57.4%), fear of future suffering (51.1%) and social concerns (22.0%). VAD enquiries impacted multiple quality domains, both enhancing or impeding whole person care, family caregiving and the palliative care team. Open communication promoted adherence to therapeutic options and whole person care and allowed for timely access to palliative care. Patients sought VAD over palliative care as a solution to suffering, with the withholding of information impacting relationships.<br />Significance of Results: As legislation is expanded across jurisdictions, palliative care is challenged to accompany patients on their chosen path. Studies are necessary to explore how to ensure the quality of palliative care remains enhanced in those who pursue VAD and support continues for caregivers and staff in their accompaniment of patients.<br />Competing Interests: Competing interests: None declared.<br /> (© Author(s) (or their employer(s)) 2024. No commercial re-use. See rights and permissions. Published by BMJ.)

Details

Language :
English
ISSN :
2045-4368
Database :
MEDLINE
Journal :
BMJ supportive & palliative care
Publication Type :
Academic Journal
Accession number :
38871403
Full Text :
https://doi.org/10.1136/spcare-2024-004946