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'If you build it, they will comeā€¦to the wrong door: evaluating patient and caregiver-initiated ethics consultations via a patient portal'.

Authors :
Blackler L
Scharf AE
Matsoukas K
Colletti M
Voigt LP
Source :
BMJ health & care informatics [BMJ Health Care Inform] 2024 Apr 27; Vol. 31 (1). Date of Electronic Publication: 2024 Apr 27.
Publication Year :
2024

Abstract

Objectives: Memorial Sloan Kettering Cancer Center (MSK) sought to empower patients and caregivers to be more proactive in requesting ethics consultations.<br />Methods: Functionality was developed on MSK's electronic patient portal that allowed patients and/or caregivers to request ethics consultations. The Ethics Consultation Service (ECS) responded to all requests, which were documented and analysed.<br />Results: Of the 74 requests made through the portal, only one fell under the purview of the ECS. The others were primarily requests for assistance with coordinating clinical care, hospital resources or frustrations with the hospital or clinical team.<br />Discussion: To better empower patients and caregivers to engage Ethics, healthcare organisations and ECSs must first provide them with accessible, understandable and iterative educational resources.<br />Conclusion: After 19.5 months, the 'Request Ethics Consultation' functionality on the patient portal was suspended. Developing resources on the role of Ethics for our patients and caregivers remains a priority.<br />Competing Interests: Competing interests: None declared.<br /> (© Author(s) (or their employer(s)) 2024. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.)

Details

Language :
English
ISSN :
2632-1009
Volume :
31
Issue :
1
Database :
MEDLINE
Journal :
BMJ health & care informatics
Publication Type :
Academic Journal
Accession number :
38677775
Full Text :
https://doi.org/10.1136/bmjhci-2023-100988