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In Their Own Words: Fears Expressed by People with Parkinson's Disease in an Online Symptom Database.
- Source :
-
Journal of Parkinson's disease [J Parkinsons Dis] 2024; Vol. 14 (4), pp. 865-872. - Publication Year :
- 2024
-
Abstract
- Parkinson's disease (PD) carries substantial psychosocial burden. Using a database of responses by people with PD reporting up to five "most bothersome problems," we identified 225 fear-based verbatims, which were organized using the framework method into 26 categories. Commonly-reported fears included uncertainty of progression (n = 60, 26.7%), fear of future cognitive impairment (n = 24, 10.7%) and fear of becoming a burden on others (n = 23, 10.2%). Fears in PD are wide-ranging and can constitute the most bothersome aspect of the condition. These data can be used to design interventions to lessen the psychosocial burden of PD.
Details
- Language :
- English
- ISSN :
- 1877-718X
- Volume :
- 14
- Issue :
- 4
- Database :
- MEDLINE
- Journal :
- Journal of Parkinson's disease
- Publication Type :
- Academic Journal
- Accession number :
- 38669556
- Full Text :
- https://doi.org/10.3233/JPD-230305