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The Pandemic Response Commons.
- Source :
-
JAMIA open [JAMIA Open] 2024 Apr 11; Vol. 7 (2), pp. ooae025. Date of Electronic Publication: 2024 Apr 11 (Print Publication: 2024). - Publication Year :
- 2024
-
Abstract
- Objectives: A data commons is a software platform for managing, curating, analyzing, and sharing data with a community. The Pandemic Response Commons (PRC) is a data commons designed to provide a data platform for researchers studying an epidemic or pandemic.<br />Methods: The PRC was developed using the open source Gen3 data platform and is based upon consortium, data, and platform agreements developed by the not-for-profit Open Commons Consortium. A formal consortium of Chicagoland area organizations was formed to develop and operate the PRC.<br />Results: The consortium developed a general PRC and an instance of it for the Chicagoland region called the Chicagoland COVID-19 Commons. A Gen3 data platform was set up and operated with policies, procedures, and controls for a NIST SP 800-53 revision 4 Moderate system. A consensus data model for the commons was developed, and a variety of datasets were curated, harmonized and ingested, including statistical summary data about COVID cases, patient level clinical data, and SARS-CoV-2 viral variant data.<br />Discussion and Conclusions: Given the various legal and data agreements required to operate a data commons, a PRC is designed to be in place and operating at a low level prior to the occurrence of an epidemic, with the activities increasing as required during an epidemic. A regional instance of a PRC can also be part of a broader data ecosystem or data mesh consisting of multiple regional commons supporting pandemic response through sharing regional data.<br />Competing Interests: None declared.<br /> (© The Author(s) 2024. Published by Oxford University Press on behalf of the American Medical Informatics Association.)
Details
- Language :
- English
- ISSN :
- 2574-2531
- Volume :
- 7
- Issue :
- 2
- Database :
- MEDLINE
- Journal :
- JAMIA open
- Publication Type :
- Academic Journal
- Accession number :
- 38617994
- Full Text :
- https://doi.org/10.1093/jamiaopen/ooae025