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Underrepresented and Underserved Populations in Neurological Research.

Authors :
Windon CC
Jackson AJ
Aguirre GA
Tucker M
Amuiri A
Hill-Jarrett T
Chen M
Pina Escuedro SD
Lieu K
Lopez L
Mei D
Tee BL
Watson CW
Agwu C
Kramer J
Lanata S
Source :
Seminars in neurology [Semin Neurol] 2024 Apr; Vol. 44 (2), pp. 168-177. Date of Electronic Publication: 2024 Mar 14.
Publication Year :
2024

Abstract

Underserved and underrepresented populations have historically been excluded from neurological research. This lack of representation has implications for translation of research findings into clinical practice given the impact of social determinants of health on neurological disease risk, progression, and outcomes. Lack of inclusion in research is driven by individual-, investigator-, and study-level barriers as well as larger systemic injustices (e.g., structural racism, discriminatory practices). Although strategies to increase inclusion of underserved and underrepresented populations have been put forth, numerous questions remain about the most effective methodology. In this article, we highlight inclusivity patterns and gaps among the most common neurological conditions and propose best practices informed by our own experiences in engagement of local community organizations and collaboration efforts to increase underserved and underrepresented population participation in neurological research.<br />Competing Interests: C.C.W. has received honoraria from the American Academy of Neurology and the Kinetix Group and a consulting fee from LCN. T.H-J. has received consulting fees from Cogstate neuropsychology.<br /> (Thieme. All rights reserved.)

Details

Language :
English
ISSN :
1098-9021
Volume :
44
Issue :
2
Database :
MEDLINE
Journal :
Seminars in neurology
Publication Type :
Academic Journal
Accession number :
38485127
Full Text :
https://doi.org/10.1055/s-0044-1782516