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Feasibility, acceptability, and outcomes of a pilot intervention facilitating communication about family building between patients with inherited cancer risk and their partners.

Authors :
Dean M
Baker JT
Reblin M
Hintz EA
Vadaparampil ST
Haskins C
Quinn GP
Source :
PEC innovation [PEC Innov] 2022 Jun 01; Vol. 1, pp. 100055. Date of Electronic Publication: 2022 Jun 01 (Print Publication: 2022).
Publication Year :
2022

Abstract

Objective: This study reports the feasibility, acceptability, and outcomes of a longitudinal, communication pilot intervention for patients with inherited cancer risk and their partners.<br />Methods: Couples were recruited through social media and snowball sampling. At Time 1 and 2, 15 couples completed a structured discussion task about family building concerns and decisions, followed by an online post-discussion questionnaire and dyadic interview to provide feedback about the experience. Interview data were analyzed to assess outcomes using applied thematic analysis.<br />Results: Participants reported the intervention created an opportunity for honest disclosure of family building goals and concerns. Participants also stated the structured nature of the discussion task was useful and did not cause additional stress. The intervention ultimately aided at-risk patients and their partners to realize their concordant concerns, discover/confront discordant concerns, and mutually agree upon next steps.<br />Conclusions: This pilot intervention is feasible and acceptable. Furthermore, it offers a framework to facilitate effective communication about family building between patients with inherited cancer risk and their partners.<br />Innovation: This intervention is the first conversational tool designed for at-risk patients and their partners.<br />Competing Interests: The authors report no conflicts of interest.<br /> (© 2022 The Authors.)

Details

Language :
English
ISSN :
2772-6282
Volume :
1
Database :
MEDLINE
Journal :
PEC innovation
Publication Type :
Academic Journal
Accession number :
37213754
Full Text :
https://doi.org/10.1016/j.pecinn.2022.100055