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Feasibility, usability, and acceptability of personalized web-based assessment of social network and daily social support interactions over time.

Authors :
Reblin M
McCormick R
Mansfield KJ
Wawrzynski SE
Ketcher D
Tennant KE
Guo JW
Jones EC
Cloyes KG
Source :
Journal of cancer survivorship : research and practice [J Cancer Surviv] 2022 Aug; Vol. 16 (4), pp. 904-912. Date of Electronic Publication: 2022 Jan 22.
Publication Year :
2022

Abstract

Purpose: The purpose of this study was to test the feasibility, usability, and acceptability of implementing a web-based method for collecting social network and longitudinal daily interaction data from cancer survivors and their caregivers.<br />Methods: Young adult and sexual/gender minority cancer survivors and their informal caregivers were recruited as dyads. Feasibility data, including enrollment and retention, were captured. Individual social network data were collected at baseline and used to individualize daily electronically delivered surveys assessing characteristics of daily social support-related interactions with identified network members for 14 days. Follow-up questionnaires assessing usability and exit interviews assessing acceptability were completed at the end of the 2-week study period.<br />Results: Fourteen survivor-caregiver dyads (28 individual participants) were enrolled and completed all baseline and final measures. Participants completed 85.2% of daily diary reports and reported excellent usability ratings. Acceptability was also high. In qualitative interviews, participants reported enjoying the daily reflection on social support facilitated by our methods.<br />Conclusions: Our method has been shown to be highly feasible, usable, and acceptable.<br />Implications for Cancer Survivors: Developing better data collection tools can lead to better understanding of the social support cancer survivors and their caregivers receive, and how the social network structure facilitates or creates barriers to accessing this support.<br /> (© 2021. The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.)

Details

Language :
English
ISSN :
1932-2267
Volume :
16
Issue :
4
Database :
MEDLINE
Journal :
Journal of cancer survivorship : research and practice
Publication Type :
Academic Journal
Accession number :
35064551
Full Text :
https://doi.org/10.1007/s11764-021-01083-x