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Expectations of a new opt-out system of consent for deceased organ donation in England: A qualitative interview study.
- Source :
-
Health expectations : an international journal of public participation in health care and health policy [Health Expect] 2022 Apr; Vol. 25 (2), pp. 607-616. Date of Electronic Publication: 2021 Dec 24. - Publication Year :
- 2022
-
Abstract
- Introduction: In 2020 England moved to an opt-out deceased donation law. We aimed to investigate the views of a mixed stakeholder group comprising people with kidney disease, family members and healthcare practitioners towards the change in legislation. We investigated the expected impacts of the new legislation on deceased-donor and living-donor transplantation, and views on media campaigns regarding the law change.<br />Methods: We undertook in-depth qualitative interviews with people with kidney disease (n = 13), their family members (n = 4) and healthcare practitioners (n = 15). Purposive sampling was used to ensure diversity for patients and healthcare practitioners. Family members were recruited through snowball sampling and posters. Interviews were audio-recorded and transcribed verbatim. Transcripts were analysed using thematic analysis.<br />Results: Three themes with six subthemes were identified: (i) Expectations of impact (Hopeful patients; Cautious healthcare professionals), (ii) Living-donor transplantation (Divergent views; Unchanged clinical recommendations), (iii) Media campaigns (Single message; Highlighting recipient benefits). Patients expected the law change would result in more deceased-donor transplant opportunities.<br />Conclusions: Clinicians should ensure patients and families are aware of the current evidence regarding the impact of opt-out consent: expectations of an increased likelihood of receiving a deceased-donor transplant are not currently supported by the evidence. This may help to prevent a decline in living-donor transplantation seen in other countries with similar legislation. Media campaigns should include a focus on the impact of organ receipt.<br />Patient or Public Contribution: Two patient representatives from the Kidney Disease Health Integration Team, Primrose Granville and Soumeya Bouacida, contributed to the content and design of the study documents.<br /> (© 2021 The Authors. Health Expectations published by John Wiley & Sons Ltd.)
Details
- Language :
- English
- ISSN :
- 1369-7625
- Volume :
- 25
- Issue :
- 2
- Database :
- MEDLINE
- Journal :
- Health expectations : an international journal of public participation in health care and health policy
- Publication Type :
- Academic Journal
- Accession number :
- 34951093
- Full Text :
- https://doi.org/10.1111/hex.13394