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Siblings of children with a complex chronic disorder treated by non-invasive ventilation.
- Source :
-
Journal of paediatrics and child health [J Paediatr Child Health] 2022 May; Vol. 58 (5), pp. 842-847. Date of Electronic Publication: 2021 Dec 17. - Publication Year :
- 2022
-
Abstract
- Aim: The aim of the study was to assess the emotional and behavioural functioning of siblings of children treated with long term non-invasive ventilation (NIV).<br />Methods: Parents of children treated with NIV completed the Child Behaviour Checklist and a qualitative questionnaire for each sibling, aged 1.5-18 years old.<br />Results: The parents of 49 ventilated children were questioned about 79 siblings. For the siblings aged 1.5-5, mean total T score was 57 ± 22 (range 28-92), and five siblings (31%) were in the clinical range. For the siblings aged 6-18, mean total T score was 49 ± 12 (range 26-71), and six siblings (10%) were in the clinical range. Siblings felt responsible for their affected sibling (31%) and involved with his/her illness (52%), with 31% being worried about him/her. A change in behaviour was observed in 19% of the siblings since the initiation of NIV; 26% were impacted by the use of the NIV device.<br />Conclusions: The majority of siblings of children treated with NIV do not present significant emotional and behavioural problems. They feel deeply responsible for their affected sibling and involved in his/her illness and treatment, highlighting the importance to involve the siblings in the care of the affected child.<br /> (© 2021 Paediatrics and Child Health Division (The Royal Australasian College of Physicians).)
Details
- Language :
- English
- ISSN :
- 1440-1754
- Volume :
- 58
- Issue :
- 5
- Database :
- MEDLINE
- Journal :
- Journal of paediatrics and child health
- Publication Type :
- Academic Journal
- Accession number :
- 34919301
- Full Text :
- https://doi.org/10.1111/jpc.15856